16th annual bowlathon to honor frankie spano
Our 16th Annual Bowlathon is set for Syosset Lanes at 111 Eileen Way, Syosset NY. (516) 921-7575 for information and directions.
Bill Tucker (from MCARY Inc) has been our event Chairman and Sponsor for all 16 years and has once again put together another fun-filled night of Bowling, Food, Raffles, and Contests.
A portion of the proceeds from this year’s event will be used to help the Spano family and their very special son Frankie. This young man continues his fight and needs our help. Please read Frankie’s story below.
We hope that you can help the Spano’s by participating in this fun event. It is always one of our most successful events and a great Saturday night out.
The Evening Includes:
3 Games of Bowling (prizes for top finishers)
Buffet Dinner throughout the evening
Dessert Soda, Coffee, Tea
Cash Bar Available
Raffles, Contests, and Prizes
Ticket Price for Individual Bowler is: $75
Sponsorship Opportunities. Your help will really make an impact on the lives of childhood cancer patients and their families. Please consider one of our available sponsorships.
|Platinum “Turkey” Sponsor||Includes 6 Bowlers, prominently displayed signs, and event recognition||$ 1,500.00|
|Gold “Strike” Sponsor||Includes 4 Bowlers, prominently displayed signs, and event recognition||$ 1,000.00|
|Silver “Spare” Sponsor||Includes 2 Bowlers, prominently displayed signs, and event recognition||$ 600.00|
|Bronze Lane Sponsor||Includes Lane Signs prominently displayed||$ 300.00|
We happily accept your credit card donations.
On August 10, 2018, Frankie was suddenly and unexpectedly was diagnosed with very rare and dangerous type of AML (acute myeloid leukemia). He was immediately admitted to the hospital, with a white blood cell count of 325,000 (normal is about 8,000). His body was riddled with cancer cells and he spent the next week in ICU fighting for his life. Once he was stabilized, the doctors came up with a treatment plan- 5 intense rounds of inpatient chemotherapy. We were told he had about a 50-70% chance of survival with treatment. Each round of chemo required a 3-4 week stay in the hospital- a week of chemotherapy treatment followed by 2-3 weeks of managing side effects and keeping Frankie isolated since his immune system was being destroyed. He needed almost daily blood and platelet transfusions, suffered from mouth and GI sores, loss of appetite, nausea, his hair fell out in clumps.
After the first round, we were ecstatic to find out that he was in remission. This gave us so much hope, we were struggling but felt like we were on the path to recovery. After the second round, they tested his bone marrow again and he was still in full remission. We again breathed a sigh of relief. After the third round of chemo and another bone marrow biopsy, we were devastated to be told that Frankie had relapsed. Since the cancer had returned in the midst of intense chemotherapy treatments, this meant it was very aggressive and we needed to fight it some other way. He was already halfway through his fourth chemo round when the relapse was discovered, and it was decided that once he was recovered from that, he would receive a bone marrow transplant.
In January of 2019, Frankie received his fifth and most intense round of chemo, followed by a bone marrow transplant from a cord blood donor. The stay was longer this time, 6 weeks. There was many complications- Frankie was in the PICU for 9 days at one point. He was unresponsive, would play or crawl, wouldn’t talk or laugh or even look at anyone. He just stared into space. He was having a reaction to all the morphine and Ativan we were giving him to manage his pain. Even when he pulled his central line out at 2am one night and the nurses had to try to find a vein- they ended up sticking him about 15 times- he barely cried out or moved. His oxygen was too low and his heart rate was high. But he eventually stabilized and pulled through.
He was finally released to the Ronald McDonald house February 27th but still needed daily check ins with the doctors and was not allowed to go home yet. Then, finally on March 22, we all went home together. Since then, he has been doing well. He has remained in remission and is a playful, happy toddler who loves being with his siblings. The biggest challenge now is treating the side effects from the bone marrow transplant. Unfortunately, Frankie has had some complications. He developed GVHD ( graft versus host disease), which is basically when his new immune system attacks his body because it recognizes it as foreign. This manifested in his G.I. system and on his skin. He has to be treated with daily doses of steroids, and also has to remain on 12 other medications daily. Because of these complications, he still needs to go to weekly hospital visits in New York City for bloodwork and check ups.
LOCATION: Syosset Bowl - 111 Eileen Way, Syosset NY
VENUE: 16th Annual Bowlathon
START DATE: November 02nd, 2019
END DATE: November 02nd, 2019